Just ran across this and it’s absolutely perfect. Made me cry because it’s completely what it’s like to live with chronic pain. Every aspect of my life has to be thought out and planned. Nearly down to the minute. What can I eat, where can I go, what kind of people will be there, what’s the environment like, weather, what pills can I take today, how am I even feeling today? And then I have to apply that information to the previous days to see how to proceed, because no day is just on it’s own. If I had any trigger food yesterday then I can’t sleep late today, and especially not if it’s raining. Yes. This is what I have to do every day of my life.
Sometimes I lose control of my spoons. :/
Advertisement
Jun 30, 2011 @ 20:19:59
It’s a very interesting way to understand what you and other people with illness or disability have to do to get through the day and function just a little or a lot depending on the number of spoons, I guess. I’ll be thinking about this …